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Did you know that May is May is Neurofibromatosis (NF) Awareness Month? It’s the perfect month to join the wonderful people at the Children’s Tumor Foundation and raise awareness about ending Neurofibromatosis Encompasses (NF) through research.
May is Neurofibromatosis (NF) Awareness Month
I’m excited to be part of this campaign because NF isn’t something we hear much about. Honestly, this is the first campaign that’s geared toward raising awareness for NF that I’ve had the honor of participating in. I do not have Neurofibromatosis (NF) but do know someone who has a child and husband fighting. Neurofibromatosis (NF) is something I rarely if ever hear people talk about and when it is mentioned many don’t know what it is. So I’m honored to be part of such a meaningful campaign, to be helping raise awareness and support all the NF fighters out there.
What is Neurofibromatosis Encompasses?
For those who are not aware of what Neurofibromatosis (NF) is, “it’s a set of genetic disorders that can cause tumors to grow along various types of nerves, which can affect development of non-nervous tissues, like skin and bones.” NF can cause tumors to grow on nerves throughout the body and according to The Children’s Tumor Foundation website, www.ctf.org, NF currently affects one in every 3,000 people of all populations and it goes without any effective treatment or cure.
One of my good friends has a child and husband who is fighting NF, and they fight every single day. She has two other children and thankfully have not shown any signs of NF. She doesn’t know if things will get worse tomorrow, or if they will live out the rest of her days without the symptoms changing. Which is why research is so important.
Having a son who is special needs I can relate to the feeling my friend feel of not knowing what tomorrow will bring. We might not share the same fight against NF, but we so share the same fight for our children. As parents, one of the scariest things one can be faced with is not knowing.
This month is the perfect time for everyone to join in and create awareness and educate about NF; there are tons of ways you can help too. Whether you decide to participate in an offline NF event, join an online event, volunteer somewhere or it could be as simple as taking the time to educate yourself about the genetic disorder. The “I Know a Fighter” is the perfect opportunity for a community to join the support all the NF fighters out there.
How can I help Awareness for Neurofibromatosis Encompasses (NF) this month?
There are so many different ways you can take part, like:
- NF Walks
- NF Endurance Events
- Racing4Research Races
- Local Community Fundraises all over the country
- Follow “I Know a Fighter” on Facebook Page, via Twitter, and Instagram to hear NF Heroes and stories.
- Visit The Children’s Tumor Foundation at www.ctf.org to learn about all the ways you can help.
- Educate yourself
- Lobby
- Everyone donation is matched during May, thanks to generous Matching Gift Programs
- Share with others
There’s a lot going on and a lot of ways you can help create awareness and educate others about NF. Be sure to head over to www.ctf.org to learn more about all the different events taking place and ways you can make a difference and support all the NF fighters out there.
When you visit The Children Tumor Foundation’s website, you can even find tools that make spreading the word EASY. Head to www.ctf.org, click on the “Spread The Word”, then social media. Under the social media tab, you’ll find Social Media Tips, with awesome suggestions for shares on Facebook, tweets on Twitter, and even Instagram posts. The Children Tumor Foundation is an awesome resource to not only learn more about NF, but how you can join the fight and create awareness about this genetic disease.
You can also find NF Walk Social Media Badges like the one listed above. As you can see, the social media badges also list where you’ll be joining the walk or run.
The Fight Doesn’t Stop
Remember just because May passes doesn’t mean the fight to raise awareness does. You can stay connected with the Children’s Tumor Foundations by visiting their www.ctf.org.
